How do individuals come to use the app?
Project Idea Metadata
- Project Idea Name: How do individuals come to use the app?
- Date: 3/18/2025 9:46:49 AM
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Administrators:
Project Idea Description
I am wondering how a potential patient would come into contact with the app in the first place.
- It is already complicated for doctors to diagnose/ look into the rare disease space based on patients symptoms, so I am wondering how an individual would even think in the first place that his/her symptoms could be linked to a rare disease
- The average health education in the population is not high. I am not even sure if people know what "rare diseases" are ? looking at my parents and surrounding environment, I would say that only 20% are potentially familiar with what "rare diseases" are.
I could see the app rather be used by doctors, maybe generalists in the first place if they have a suspicion.
We already provide data to Instagram, Facebook, or Dr. Google, ChatGPT. I don't think that would be a problem. I would definitely do so.